With the advent of the new Midnight Sun movie released in theaters last week, I thought it might be helpful to give my understanding of some of the differences between Xeroderma Pigmentosum (abbreviated as XP) and the condition that I have, Erythropoietic Protoporphyria (abbreviated as EPP). Continue reading “EPP vs XP”
I attended an EPP patient education meeting held by the American Porphyria Foundation at a place known as Camp Sundown. Continue reading “Camp Sundown”
As summer rears its hot, sunny head, I notice as I subconsciously give myself pep talks to prepare for the change in seasons. Continue reading “Method of Sun Protection-Avoidance”
I have written frequently about how words said in jest or ignorance have influenced my life. One of my purposes in this endeavor to raise awareness about Erythropoietic Protoporphyria has been to shed light on how careless or harmful words can affect the perception, attitude, and even life course of a person, especially the young. Continue reading “Disabled Free Speech”
I’m going to let my inner nerd show and confess that I have always been a fan of fantasy literature. J.R.R. Tolkien, C.S. Lewis, Terry Brooks, David Eddings, Dennis L. McKiernan, J.K. Rowling, Terry Pratchett, bring it on. Continue reading “Hero of Darkness”
It is difficult to estimate the influence of certain people in my life. I have been influenced in a multitude of positive and negative ways, just as I am sure others have been influenced by me. We all shape each other somehow, but those closest to us can reveal our true selves if will see. Continue reading “Early Friendship”
The question of the ages.
Philosophy aspires to understand the answer. Religion claims to possess the answer. Science researches to ascertain the answer. Psychology determines to solve the answer. Government avails to prescribe the answer. Continue reading “Who am I?”