With the advent of the new Midnight Sun movie released in theaters last week, I thought it might be helpful to give my understanding of some of the differences between Xeroderma Pigmentosum (abbreviated as XP) and the condition that I have, Erythropoietic Protoporphyria (abbreviated as EPP). Continue reading “EPP vs XP”

Disabled Free Speech

I have written frequently about how words said in jest or ignorance have influenced my life. One of my purposes in this endeavor to raise awareness about Erythropoietic Protoporphyria has been to shed light on how careless or harmful words can affect the perception, attitude, and even life course of a person, especially the young. Continue reading “Disabled Free Speech”

Early Friendship

It is difficult to estimate the influence of certain people in my life. I have been influenced in a multitude of positive and negative ways, just as I am sure others have been influenced by me. We all shape each other somehow, but those closest to us can reveal our true selves if we will see. Continue reading “Early Friendship”