With the advent of the new Midnight Sun movie released in theaters last week, I thought it might be helpful to give my understanding of some of the differences between Xeroderma Pigmentosum (abbreviated as XP) and the condition that I have, Erythropoietic Protoporphyria (abbreviated as EPP). Continue reading “EPP vs XP”

Disabled Free Speech

I have written frequently about how words said in jest or ignorance have influenced my life. One of my purposes in this endeavor to raise awareness about Erythropoietic Protoporphyria has been to shed light on how careless or harmful words can affect the perception, attitude, and even life course of a person, especially the young. Continue reading “Disabled Free Speech”

Early Friendship

It is difficult to estimate the influence of certain people in my life. I have been influenced in a multitude of positive and negative ways, just as I am sure others have been influenced by me. We all shape each other somehow, but those closest to us can reveal our true selves if we will see. Continue reading “Early Friendship”

Grasping Hypochondria

My last two posts talked about how my tolerance to sunlight varies based on physical and emotional factors. This was intended to be a background that could explain why those unfamiliar with EPP are often filled with skepticism. Continue reading “Grasping Hypochondria”

Inconsistency of Emotional Tolerance

I believe that we are emotional, social creatures living in a physical world, not physical creatures socially experiencing emotions. Every physical challenge is packaged with its fair share of emotional repercussions, and EPP is no different.  Continue reading “Inconsistency of Emotional Tolerance”